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Member
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Join Date: Dec 2006
Location: Florida
Posts: 445
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Member
Join Date: Dec 2006
Location: Florida
Posts: 445
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I agree with everyone else. The people I know who had a sympathectomy done, some docs still do them, have had disastrous results. It resulted in the pain being 10 x's worse and spread all over. My personal opinion on the scs is never get one. I've not met more than a couple of people in 6 yrs now that were glad they got it. Everyone else dealt with various things like whole body spread, infection, multiple surgeries for leads popping out of place and other things, etc. It's not something I recommend at all.
Seeing as the blocks are beginning to stop working, it may be because your pain is starting to become sympathetically independent, instead of sympathetically maintained. Once it's independent, blocks nor scs will have any effect. There is hbot therapy and lidocaine infusions. Hbot is something insurance won't pay for unless it's for a "approved" condition. The infusions is a maybe or maybe not thing. I've met ones who've done the lidocaine and had very good results, as well as the hbot.
Don't give up, keep fighting, find a good doc and ask questions. It's the only way we learn from each other.
Hugs,
Karen
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Laugh until you cry, don't cry until you laugh.
Living, loving and laughing with RSD for 14 years and counting.
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