Quote:
Originally Posted by Jennelle
Hi there,
I am new to the site and have been trying to find people with similar experiences. I am a Pediatric RN and hurt myself at work. My condition progressed into RSD and I have been out of work for 9 months. I was wondering if others have had issues finding good doctors. I have a case manager who hasn't been too helpful. I have had 3 doctors suggest a sympothectomy has anyone else had this done? Did you have a hard time finding doctors and resources in your community? Any suggestions from others would be helpful! I have done PT/OT/message and they all wanted me to come back after surgery, the problem is that my case manager said it was denied. Any ideas?
Thanks,
Jennelle
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Hello Jennelle,
Welcome, to this site. I just found it a couple of weeks ago and it is amazing the information that you can gather. The advice from Aintsobad is so true.
I have full body RSD (8Years). No two people are the same and the condtion effects each of us differently as do the treatment. What works for me may not work for you. Injections did not work for me and I had them over and over.
Finding the doctors who understand RSD and want to help is difficult. You must take control on your health care be an active participant. Don't be afraid to ask questions and be direct with your questions do they know enough about the condition? Some doctors know enough to know they can't help and you can respect that. Find a good pain management psychologist. Mine is wonderful he knows RSD and he helps me sort through treatment options and legal matters. Excercise I water walk at the Y 2 to 3 times a week. The excercise helps you to keep moving and helps your mental balance.
Visit the RSDS.org website for informaiton and then contact their office for a doctor referal in your area. Sometimes they put an e-mail out asking members for recommendations. Aintsobad's advice about a neurologist is something you should look into.
I won't lie and tell you the road ahead is easy. RSD is an awful condition that effects everyone differently. Don't allow yourself to be defined by your condition.
My personal relationship with God and his peace that passes all understanding have been my life saver!!!!!!!!!!
Good luck and may God Bless You!!!!
Sherrie