Quote:
Originally Posted by SBOWLING
Hey Lordwood,
You are making a good decision to be an active participant in your care. Don't allow RSD to define you as a person. It takes a lot of patience to work with your meds and doctors to get the right cocktail that works for you. It's hard to stay postitive when you are in so much pain. Keeping stress and anxiety under control has been key for me I take .5 mg of Ativan twice a day and it works for me.
Hopefully you will find the relief that works for you soon!!
Take care,
Sbowling
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LordWood,
What Sbowling says is spot on.
I have a question for you.
You tell us things that haven't worked, but, (Maybe I didn't read elsewhere), I don't know how long you've had rsd, if you have tos too, or anything in addition, and, what meds you are taking now, what is your current cocktail?
For instance,
I've had rsd for 25+ years. It spread to what we'd call full body long ago, I also have TOS, and Then got a TBI , and discs, and other things.
My "Cocktail" is
Methadone for pain 50-60mg / day.
Cymbalta pain/antidepressant. 60mg/
Diazepam, muscle relaxant/ de stressor
Zanaflex / muscle relaxant
Namenda, Topomax, Zonegran. nerve pain and anti convulsants
Imetrex (migraine).
From there, meds cross over to the brain injury.
Lots of these are scheduled especially the first few, then some are prn.
as needed.
Maybe, we could help with what you're taking, although I don't think we're doctors, but more than that..
You seem to be looking for an absolute cure.
I don't know that RSD has one.
It's a disease that gets "managed". And, that's all.
Sometimes we do well, sometimes not.
Sometimes the pain is under control, sometimes, it breaks through.
Keep on Keepin On!
Pete
ASB