Your titers are above normal. That's not normal! Those are the binding antibodies, BTW.

http://www.ichotelsgroup.com/h/d/hi/1/en/hotel/cphnc

That's the hotel. They have room service, fridges in some rooms, etc. They do have a pool, so that's nice. And they have that free shuttle service to the UNC buildings. Just tell them you are there for medical reasons and you'll get a discount, if you decide to go there.

I understand your point, HCMiller, but it actually IS important to get a solid diagnosis. Why? Because a person doesn't want to take immunosuppressants if they don't have MG. And those tests, however imperfect, are about the only way to confirm MG. MG is a clinical diagnosis backed up with tests. If someone does not get a SOLID diagnosis, then they can end up being tossed from neuro to neuro who refuse to treat their already diagnosed disease! And even a small dose of Mestinon can make "normal" people feel better so it isn't always a good way to "diagnose" MG.

It shouldn't be this hard for anyone to get an MG diagnosis. It is criminal.

BTW, that neuro you saw at Mayo isn't even a neuromuscular disease specialist, let alone an MG expert!!! You should ask for your money back! To edit, just press the edit box within your post (bottom right area) and then edit away.

Whatever you decide, good luck.

Annie