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Old 04-02-2009, 08:51 PM
bluesky bluesky is offline
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Join Date: Mar 2009
Posts: 173
15 yr Member
bluesky bluesky is offline
Member
 
Join Date: Mar 2009
Posts: 173
15 yr Member
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Thanks, Annie! Thank you so much!

I agree that I do need a solid diagnosis. I need it for the emergency room, I need it for treatment, I need it so I don't have to keep going through the same nightmare again and again every time I see a new doctor.

The blood tests are supposed to be very specific and dependable. I read things like they "almost never give false positives" (from the MG Assoc) and false positives are very rare and have only some reported cases from other auto-immune patients, so I don't understand why I keep getting blown off.

Anyway, I went off of mestinon last night and today the whole right side of my face fell down. I took a lot of good pictures! Of course I'm finding it harder to breathe, but hey, breathing is for sissies right?
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