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Old 04-02-2009, 11:26 PM
ras1256 ras1256 is offline
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Join Date: Feb 2009
Location: outside Denver, Colorado
Posts: 366
15 yr Member
ras1256 ras1256 is offline
Member
 
Join Date: Feb 2009
Location: outside Denver, Colorado
Posts: 366
15 yr Member
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Hi there hcmiller92!

I can sure understand why you are so passionate. I'm glad your regimen worked for you - must be such a relief to have found a solution for yourself. I myself do not have much luck with the Prednisone, but do with an immunosupressant. IVIG works really well for Erin, but again - that one doesn't do much for me. I was taking the immunosupressants and Mestinon up until I went into my remission.

Just pointing out how different we all are. And that's something the newly diagnosed need to understand as well. I remember getting so depressed when I didn't get the bump from the IVIG! I just thought all treatments were equal in all people, but realize that it's not the way it is.

Best of luck to you - I wish you continued success with managing this miserable disease!

I bet a lot of your recovery has to do with your fiesty personality!
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