Thanks to all
I'm so glad I found a place that I can talk about the study.I am going to write and let you know if this drug works or not.I been in the study since Oct 2006 my first infusion was Feb 2007.I walked to those appts with a hiking stick.Then another infusion Aug 2007 still hopeful started having more problems.I thought ok its only been 2 infusions maybe it works slowly.Ok Feb 2008 another infusion really having problems balance,legs are weaker feels like they weigh 300lbs each.I start to fall anywhere anytime.Time for a walker thinking this drug isn't working or I'm getting a placebo.Depression is now really overwelming.All the needles,Ivs tests MRIs for what.By June 2008 needed help getting to the appt then a wheelchair to get to all these tests.Aug 2008 another infusion.Nothing again just black depression and one leg that I couldn't lift.Oct 2008 Begged them to find out if I could get meds sooner No.The study does not allow that.I was crushed my next infusion Feb 2009 was the real drug and I begged.By Nov 2008 my pain went out of control.My leg felt like someone was stabbing it to the bone then setting it on fire.I have neuropathic pain but this was new.Gave up three more meds to take.Okay just make it till Feb 28,2008 what else just stop asking for help early.Three days before the infusion I had what I thought was a stroke.I couldn't talk and when I tried I sounded like a robot with words mixed up or backwards.I have little memory of this.I repeated myself for 6hrs.Went to my appt on Fri and after a eeg,ct scan and ultrasound the Neuroligist says its Transient Global Amneisia.So they gave the infusion MBP8298 not one day sooner to help me.I have never cried in front of the people I trusted with my health now I can't stop.Hope that this drug works because it cost me and many other people everything.Anyone out there with the same story Please write me.Thank you for reading.Jim