One big, warm, tight, hug, handshake and howdy, moose-size welcome to the site.
This place is amazing!
I know nothing of the disease you mentioned, but I'm willing to learn and help where I can. Kudos to you for taking an intrest in it and helping your friend.
You are not alone.
You are one of us.
And we are here to help.
I am the MonSter that MS fears.