Hi QM and welcome. I've been caring for my hubby full time for six years. Before that I helped him with many things. He's had ms for 21 years. He's in a wheelchair. So, yes, I understand the frustration of not having some doctors listen. Been through all the ups and downs. We've finally landed a great spinal cord doctor and he's a keeper. They are out there, keep looking. Once you find a great doctor things settle down more because you develop a trust with them.
Anytime you have questions or just need an ear, we're here for you. There are several carepartners on this site that understand and get it too.