Quote:
Originally Posted by LordWood
First of all thank you for your post. While were not doctors in the field of treating ourselves we are truly the only ones which know whats a right path and whats a started out fail. Doctors cannot grasp where were at and there for cannot administer correct treatments its up to us to gain control and word on our own cocktail. Mine has been a mix for awhile but now its down to barely nothing because we had thought i was going for the ketamine, anyway what i am on now:
Oxycontin 80mg 2x Daily
Neurontin 600mg 3x Daily (This medicine is a waste and i still don't know why they keep me on it i was on 300mg 3capsules 3 times a day and now they lowered to this makes no sense to be on.)
Alprazolam(Xanax) .50mg 1 3times Daily
I've been on every med you listed except for Zanaflex which i had skelaxin,
Namenda, Zonegran which i to took Valproic acid, Imetrex.
Iam also on med for my crohns.
I'd like just for it to be under control. But i have seen patients that have been cured. You wouldn't believe how many come out of sherrys program cured and never have to come back.
My thinking is Uping the Oxy to 160mg 2 Daily. Getting rid of the neurontin. replacing it with My Old Dialudid 4mg tablets 1 tablet 3 times a day. Also adding back a stronger dose of methadone. Than increasing my Alprazolam(xanax) to 1mg tablets. I think this is a nice start to finding my way around towards the perfect cocktail.
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I'm so very glad to see that you're working this through in your mind. I don't know where you're from, I'm near Philly, and can get to good doctors, rather quickly.
I think you've lost faith in your doctors, which has happened to me before, and lots of us.
You know what you need to do. Which is a great step.
Yes, you're correct, we are the "Test dummies".
WE have to tell the Doctors what's up.
What is quality of life with all this suffering?
The methadone works well for me, with it's adjuncts, and miralax for constipation. (I used to be @ 15mg/ day, after the second accident, went to 100mg/day. Now I'm settled at 50-60mg/day. with the other things).
So, Keep on Keepin' On!
Find a doctor, and, I think that you really got "kicked down" with dr S.
I'm sorry for that.
Don't let it stop your determination to find a better life.
I live in depression, and find Cymbalta good for pain relief too.
(After ALL the other ones, but still, you hafto find what works for you).
I hope you have or find a good pain management psych.
A good neuro,
and keep it moving!
The triangle of RSD care. that I've stated before.
I wish the best for you, and will keep you in my prayers!
Pete
ASB