HCMiller hasn't had a thymectomy, according to his post stating that they're BS he hasn't even had a CT scan of his thymus. He really seems to like his steroids though...

Confused, please don't get frustrated with the conflicting information you're hearing here. We're not neurologists, merely other people who're going through similar illness. Discuss your issues with your healthcare team, get your final answers from them and don't be afraid to ask for second opinions of other health care professionals if you're not satisfied with the answers you get.

The research supports that removal of your thymus may help you with your symptoms. It is not a guarantee though, there are people who show no improvement after having their thymus removed. It can also take several years to improvement as your body repairs the damage done by the disease.

Medication may be the correct course of action for you; or a thymectomy may be. That is not for anyone here to say though. You need to discuss with your health care team and have the tests done to determine what the right course of action for you and your situation is.

Best of luck to you

Brian