I just found this forum and wanted to repond to this thread. I've been on topomax for 11 months now . . . . maxed out at 400 mgs per day. My hair has always been VERY thick. I've lost about 50% of my hair and am just starting to wean off of topo because of it. I can't stand the thought of loosing my hair!!

They want to put me on neurontin but I don't want that either because I can't take the weight gain. I have a history of cushings disease and have lost 119 pounds since my pituitary surgeries and bilateral adrenalectomy.

Are there any other options as far as medicine is concerned?

p.s. - Carrie you just helped answer another question for me and my endo. I didn't realize that topo raised potassium. Without adrenal glands I have to monitor sodium and potassium closely and my potassium has been running right on the high side at 5.0 lately and we couldn't figure out why. I had even increased my florinef a little to counteract. Ah-ha . . . see why it takes a village for sick people too!! Thanks