Originally Posted by serene_butterfly

Hey Everyone

As I have already posted on the Introduction area of the site. My name is Rhiann and this is a little about my undiagnosed condition...

I have been suffering from bad dizzy spells since the age of about 8 when I was still in primary although they have been getting worse and worse of late. I don not get the dzziness all the time but intermittingly and sometimes can go a week without having one. On the really bad days, I sometimes struggle getting out of bed and also struggle with focusing on objects as everything seems to be moving around me and I also tend to get double vision. I have noticed over the past few days that I sometimes get these 'spells' which only last a few seconds.

More recently also, my balance has also become affected with me falling all over the place and also feel that when I am standing up I feel that I am swaying back and forward, and when I am walking up and down stairs I have to hang on to something. Other symptoms experienced is tingling sensations in my legs but can also feel as if they are really heavy.

The doctors still does not what causes it, but as I also suffer from an anxiety disorder, they all tend to put it down to that but when I am anxious the dizziness feels completely different, and one day I was supposed to be going out to the theatre but was unable to go as it was one of the worst 'dizzy episodes' I had ever experienced - literally has it during the night and lasted the entire day - surely if it was anxiety it would have gone when the decision was made that I was unable to go plus the fact that I was really looking forward to seeing the play.

Just posting to see if anyone had any ideas of what it could be or anything, I am on a waiting list to see a neurologist and am also due to be going to the hospital next week for an echocardiogram and to be fitted with an ECG monitor for 24 hours. It's hard though as I finding it really hard explaining what the dizzy spells as actually like, I can't find the right words