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Old 04-05-2009, 02:09 PM
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erinhermes erinhermes is offline
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Join Date: Jul 2008
Location: San Antonio
Posts: 1,471
15 yr Member
erinhermes erinhermes is offline
Senior Member
erinhermes's Avatar
 
Join Date: Jul 2008
Location: San Antonio
Posts: 1,471
15 yr Member
Exclamation Watch out for the breathing!

Hey there! If you have problems breathing call 911! IT is really, really serious! I was the same way until I was in the ICU for over a week - I am not trying to scare you, only to let you kow that it really is serious!

Have some sort of system set up where you can call someone and push a button to let them know you can;t speak - breathe - and then wait for the ambulance........

It is so wrong that you are having such a hard time being dx'ed...........

I know what you mean about being told it is on your head - I was told years ago (when I first started feeling weak) that I was depressed - and given a prescription for antidepressants - guess what? Didn't work - wasn't depressed - I was sick!

No one on this forum thinks you are crazy - we all know how hard it is to get someone to LISTEN to us!

Erin
Quote:
Originally Posted by bluesky View Post
You made my day. You don't think I'm crazy!!!

I'm going to keep trying as long as it takes to get an answer. This forum has given me the confidence to go on.

I called Dr. Howard's office this morning and they said that they're scheduling new patients 8-12 months out. Yikes. That's not what I wanted to hear! Still, I'm going to go ahead with the referral (I'm going to have to ask the mayo doc for a referral, I don't see any other way). I'm also going to get a referral to a doctor on the west coast that Dr. Howard recommended as a specialist. I hope he's nice. I hope he listens.

Don't worry, I'll keep an eye on the breathing.
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