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Old 04-05-2009, 03:19 PM
nemsmom nemsmom is offline
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Join Date: Feb 2009
Location: Oregon Coast
Posts: 503
15 yr Member
nemsmom nemsmom is offline
Member
 
Join Date: Feb 2009
Location: Oregon Coast
Posts: 503
15 yr Member
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Quote:
Originally Posted by bluesky View Post
You made my day. You don't think I'm crazy!!!

I'm going to keep trying as long as it takes to get an answer. This forum has given me the confidence to go on.

I called Dr. Howard's office this morning and they said that they're scheduling new patients 8-12 months out. Yikes. That's not what I wanted to hear! Still, I'm going to go ahead with the referral (I'm going to have to ask the mayo doc for a referral, I don't see any other way). I'm also going to get a referral to a doctor on the west coast that Dr. Howard recommended as a specialist. I hope he's nice. I hope he listens.

Don't worry, I'll keep an eye on the breathing.
I haven't had much energy to read on here lately, I also have not been diagnosed with MG. But I live on the Oregon coast and am trying to figure out my weak spells. They are looking into MG possibly but right now test results aren't helping and I don't think I've been tested for antibodies. Would you mind sharing the name of the doctor on the west coast that Dr Howard recomended?

I can't afford to travel across the country to get a diagnosis but I also can't afford to keep being told it's nothing physical by some doctors and being told there is something physically wrong, I just don't know what by other doctors.

I hope you get your answers soon.

Kristie
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