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Old 04-05-2009, 05:35 PM
AnnieB3 AnnieB3 is offline
Grand Magnate
 
Join Date: Feb 2009
Posts: 3,306
15 yr Member
AnnieB3 AnnieB3 is offline
Grand Magnate
 
Join Date: Feb 2009
Posts: 3,306
15 yr Member
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Kristie, I hope Mrs D comes along to help with this one. If I remember correctly, she knows about the Krebs Cycle/metabolism and may be able to explain it better.

The tests they ran are organic acids and may (or may not) reflect some type of organic acid metabolism disorder. Now don't be getting all freaked out!!!! I am NOT an expert on this stuff. I only know about it from studying biochem. I wondered if I should even give you these two websites.

http://www.newtreatments.org/Basics/...test%20results

http://biochemgenetics.stanford.edu/organicacids.html

What you need is someone to explain if these results are significant or not. A regular neurologist may or may not be able to deal with this.

ALWAYS call your neuro with new symptoms. Tingling all over your body is definitely worth calling about!

I hope someone can give you some answers. It really sucks having to wait around for them. Just because the AChR antibodies were negative doesn't mean you don't have MG.

Wish I could help more.

Annie
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