View Single Post
Old 04-05-2009, 11:46 PM
bluesky bluesky is offline
Member
 
Join Date: Mar 2009
Posts: 173
15 yr Member
bluesky bluesky is offline
Member
 
Join Date: Mar 2009
Posts: 173
15 yr Member
Default

Hi Dottie,

I'm new to the forum too. I haven't been officially diagnosed yet, although I did test positive for the antibodies. I wanted to say that I also have terrible fatigue and trouble breathing as my main symptoms. Of course, silly me, I thought my trouble breathing was because I was so exhausted. Anyway, I didn't have the typical drooping eye until 7 years into this mess.

I have to say - I'm just amazed that you were diagnosed. Whichever doctor it was who gave you the emg is one smart cookie.

Again, I'm undiagnosed, but for what it's worth the mestinon helped enormously with the breathing problems for me and did nothing much for the fatigue.

I'm sure there are lots of people who will come along and be of much greater help to you. But I just wanted to say that, you're right, we're all different as far as symptoms go but it sounds like you and I are similar.

Ally
bluesky is offline   Reply With QuoteReply With Quote