I wrote a song with my friend Preston Sturges based on a book my sister gave me about ALS. . . which I of course will never read. Here are the lyrics:

Learning To Fall

I was young and knew nothing
Now somehow I know even less
Forgive me my youth
It was all for the best
Forgive my foolishness
It's grown simpler now
Cuz I’m sure what I like
who I love
And who I'm going to fight
As long as there's time on my hands

I've had to run
I've had to crawl
Been rich as a king
Had nothin' at all
Still raising hell
And tearing down walls
I know where I stand
Learning to fall

Me I've tasted true glory
Had a long sweet time on the stage
I laughed til I cried
I lived what I played
Never had to act my age
And it’s beautiful how
New blessings unfold
In ways I could never have known
And I’ve still got some time on my hands

I've had to run
I've had to crawl
Been rich as a king
Had nothin' at all
Still raising hell
And tearing down walls
I know where I stand
Learning to fall

Words & Music by Eric Lowen & Preston Sturges ©2005