Thread: IVIg
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Old 04-06-2009, 10:52 AM
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BEGLET BEGLET is offline
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Join Date: Sep 2006
Location: So Cali
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BEGLET BEGLET is offline
In Memorium
BEGLET's Avatar
 
Join Date: Sep 2006
Location: So Cali
Posts: 661
15 yr Member
Default Re: IVIG - PrarieMary

Havent been on the site in months cause been very sick with autonomic complications of my PN - however, just trying to catch up....

PrairieMary - yes, the IVIG is a life saver for GBS - and is usually used in treatment as a lifesaver - CIDP, etc... is not as life threatening and usually requires constant proof of need, imrovement, etc....

I am no longer getting IVIG - long term it proved useless to me unforutanely, and I'm becoming increasingly disabled... but it works for many (my diagnosis has changed to genetic PN also)

Being a fellow Canuck just displaced - I've found all my relatives get very good care up there! sometimes you just have to wait for non-emergent doc appts. - but you do get good care... In fact, if I still needed the IVIG I couldnt get it due to budget cuts etc. and would have to do without.. there are unfortunately many folks in this situation right now in this country.... It depends on your insurance etc....

Hang in there
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