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Member
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Join Date: Feb 2009
Location: Oregon Coast
Posts: 503
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Member
Join Date: Feb 2009
Location: Oregon Coast
Posts: 503
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Hi
Quote:
Originally Posted by korbi_doc
Hi Ally, boy, you do sound just like me with those symptoms...exertional dypsnea is no fun & becomes very difficult to deal with, as if the exhaustion is not bad enough....now that I look back to my life when in the veterinary hospital, I realize that there has always been somewhat of a problem with extreme fatigue....rode horses & showed them for many yrs, & the last few yrs, many of my friends wondered why I couldn't keep up, esp with my english horse in long tough classes...I blamed it on our marathon days in the office doing surgeries both before & after the horse shows, thought I was just getting older & too tired....lol....hindsight is 20:20....
About the neuro doc, he told me he didn't know, since it wasn't his area of expertise (oncology, neuro), even tho the EMG was decremental, so he recommended one of his colleagues, who is experienced with it...would've sent me to anyone of my choice, how's that for a good guy?? I don't read that about many on these forums....hope you get your dx soon, but does seem conclusive already...
ras, you can be assured I'll be careful with meds, it's in my modus operandi ....the 60 mg tabs did nothing for me from the 1st doc, & his colleague stated it was a very lo dose....I've not read that it's a nighttime drug, but I need help to manage my days, so take one very early am & do feel the difference...the 2nd dose I take in late pm...seems to work for me, I knew I needed that 2nd dose when late afternoon set upon me.....
&, you are so right 'bout managing your activities, & I've realized, as have you, we can't come all the way back....just driving over an hour to the neurosciences dept & back, leaves me quite exhausted for sev'l days, but I am the type to push that envelope as far as I can...in yrs past, running the vet hospital, office hrs, surgery, dealing with clients & keeping up with new information, etc, took up all my days & sev'l nights a week...my goal right now is to get back on one of my horses this summer & ride..think I'll send him/her to a trainer 1st for a few wks to get him ready...I also have a large fishroom with 6 big tanks to care for & I'm sad to say I've fallen down on that one, just can't do it the way it needs doing....& then there's the dogs....oh well...C'est la vie.....
Thanks both for your comments, & hope you are able to "keep in control"...I'm also interested in other meds for this disease, imuran, tho nasty drug may be useful, what happened to Monarsen? nothing since '06...prednisone is evidently good for some, but put me in the toilet immediately...no one can answer why....
Dottie
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Dottie,
I haven't been diagnosed as to what my weak spells are and don't really have any good test results to probe anything yet I just wanted to say that I have the same reaction to steroids.
The first time they gave me IV steroids (extremely high dose) for MS I did alright but the second time I ended up taking an ambulance to the hospital and staying for five days. I wish they knew why for either one of us.
I hope you're doing well.
Kristie
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