Hi there!!!
My name is Jennelle and I am a person with RSD and also am a Registered Nurse. I can tell you what the best DR. I have found told me so far about RSD/CRPS....pretty much every question anyone asked about the condition can be true: it can come and go, it can be hypersensitive some days and not others, it can spread to other limbs-even your face. It took the drs. awhile to finally say I had RSD, I think everyone was thinking it but didn't want to be the one to give me the dreaded diagnosis.... they finally settled on it when I got my fist nerve block and the temperature in my hand/arm went back to normal along with the color. Maybe you could try a block and see what your results are.... if it is RSD:reflex sympathetic dystrophy.... then your sympathetic nerve is the culprit and will probably respond in some way to a nerve block... I hope you get some answers... by the way what is TOS? I have heard the term twice and don't yet know what it stands for. I didn't know what RSD was until I got it either though...even being a nurse (I work in pediatrics) and I hadn't seen it in practice. Hope you find some answers! Forgot to mention some other ways to know the difference: vascular study (I just had one) where they use ultrasound to see what your vessels are doing in different positions, and a bone scan may show changes in bone and vessels I had a 3 phase one done (although mine showed PROBABLE RSD, that just meant that it showed some signs but not a definitavley because in 1/3rd of people it won't show for sure. Unfortunatley, RSD/CRPS is hard to diagnose and no one really wants to say for sure that is what you have because there is no real cure.
Jennelle