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Hi everyone - im having some conflicting diagnosis from dr's over the last 3 years or so and the latest dr thinks i may have CRPS, not TOS. I have had a physio and pain cons tell me they feel i have TOS! A rheumy and a neuro guy not have a clue whats wrong and now a vascular surgeon confusing me with another syndrome!
My question for you guys is: do CRPS patients always have the burning hot sensations and the sensitivity to touch?
I have neither which is why im fairly confused with this latest 'shot in the dark' from this new dr.
A brief list of my symptoms are (all on the right side):
Coldness in hand - and on/off in shoulder blade and arm.
Little finger tremors and feels very alien to me - tip goes purple/tingles if too
much activity - swells a little, puffy looking.
shoulder blade pain
neck stiffness
numbness on front of wrist and forearm - also recently on side side of face, just next to my mouth.
neck feels weak - head feels heavy - arm feels weak and useless (on and off)
muscle wasteage in wrist, padded part of thumb and collar bone.
pain in collar bone and up into front of neck
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Tracy-
I have CRPS in my arms from the shoulder down and I rarely have a burning pain. Usually a really uncomfortable sharp ache deep in my arms. And the sensitivity to touch is only when the pain is really bad. My arms do feel weak the more pain I endure and swelling is common as well as stiffness and temp changes.
I'm so sorry that you are not getting consistant reports from ur dr.s I know how frustrating that can be. I hope this site gives u hopefullness and gives u a will to get thru this like I know u can. it has for me.
God blessu all!
Sarah