Originally Posted by erinhermes

Hello all! Thought I'd get on and just VENT! Friday was my 35th bday but I was being released from the hosp so my hubby had my party Saturday...it was great, but I am worn out!

I try to stay upbeat, but there are times when I just want to scream and cry! My old life was sooooo full - I was able to get everything done and now can do it only 30-40% of the time.......I know there are a lot of people that are worse off, but I MISS MY OLD LIFE!!!!!!!

Granted, I know how lucky I am to be where I am today, but I just feel awful.....can;t stand the uncertainty...one day I feel great and the next can barely get out of bed.........

I was so excited about going into work today - had my clothes all laid out and then woke up barely able to do anything - got out of bed @ 1:00......

Hate this damn disease! I know that there is ALWAYS a chance for remission, but am just feeling whiny.........I had more energy @ 20 mgs of pred than I do now........if this continues, I'm going to ask for another immunosuppressant and see how that goes.........

I konw this sounds like an old country and western song, but I just feel so down.........

Erin