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Old 04-07-2009, 05:34 PM
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GalenaFaolan GalenaFaolan is offline
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Join Date: Dec 2006
Location: Florida
Posts: 445
15 yr Member
GalenaFaolan GalenaFaolan is offline
Member
GalenaFaolan's Avatar
 
Join Date: Dec 2006
Location: Florida
Posts: 445
15 yr Member
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*hugs* for you. It sounds to me as if they need to up your doses. It's a trial and error to find the right doses and the right meds to help the pain. 25mg of topomax sounds really low. Is your doc having you up the dose, aka titrate up over a week or so? That's usually how it goes with it. When is your next doc appointment? Sit down and talk to him/her and tell him/her how much pain you're still in. If there's something you want to ask, or tell the doc, make a list so you don't forget. Being in so much pain we often don't remember things we need to.

I'm sorry you're in so much pain. I was a work comp case and was given no meds at all for about a year a half while it spread full body. Nothing about rsd is pleasant but just know you're not alone and here, we all understand everything you're feeling.

Big Hugs,

Karen
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Living, loving and laughing with RSD for 14 years and counting.
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