Quote:
Originally Posted by dealingwithtos
Hi Denny,
Thank you for your response. First off, you are absolutely not a wimp!
I also have 3 programs that are working all the time. I have 2 in my left arm and 1 in my right arm. Because of where the leads ended up, I do have chest wall stimulation too. So, that's kindof annoying sometimes.
For me, posture is huge. I mean huge. If I slump, I get a singe. Putting on socks and shoes is also a challenge when I've just charged - because I'm looking down and my spine isn't straight. I can go about 2 weeks before I need to charge. Probably because I'm down so low. When I'm in pain, I just slouch my back down and look down or to the left and I use that singe to take the pain away. So, you can use those to your advantage too... I absolutely feel that if it was in my legs, I would have different settings.
Can you tell me a little bit about your back? Do you have RSD in your back or do you have back problems? Was that a result of the SCS? Just wondering as I'm having those issues now.
Thank you.
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Dealingwithtos,
Hi! Sorry I missed this until today. I didnt have problems with my back until SCS was implanted. Its bad now too. where the generator is was immediate. My back took longer. Then they redmaged a nerve in my neck that was damaged in a car accident in high school. At first there was just numbness & pain down my left arm. Then the RSD went there. My doctor did a nerve conduction study & found the damaged nerve & knew what he did. They think I had a blood clot sitting on that nerve after the trial. It was pretty much just a mess. I didnt have problems with my back at all until the SCS. I had a very pysical job before RSD came into my life. I am sorry you are having the same issues. It sounds like your SCS is was more positional than mine is. Mine doesnt change stimulation by moving quite as much as yours. I think I am lucky that way.
Hugs, Denny