Hi,

Gosh, I disappear for a couple of days and all goes MAD! Will attempt to catch up with posts but have not had a brilliant couple of weeks..

Firstly my grandma died of lung cancer on Friday and so have been trying to sort all of that out - it wasn't a shock when she died.. but the house is apparently still empty.

However, I am stuck in uni because the doctors refused to let me home until today.. I managed to get a horrendous pressure ulcer on my bum (eg visits from the nurses every day to redress it, thousands of antibiotics and was not allowed out of bed) it is clearing up so/so now... I am now only left with a hole going through my buttock.. (nice! the photos are SO impressive)... They have now said I can go home (just didn't mention the short 4/5 hour car journey) and I am now OFF bed rest! YAY The boys have been brilliant though (the ones that broke my electric wheelchair!) they have been carrying me from my bed to someone elses bed so I can remain included (and yes I know how dodgy it sounds.. but it is not like that - we just figured if I wasn't sitting it was still bedrest!)

Bloody pain/ Dystonia means I can't eat - have managed to lose over a stone in about 10 days because I can't open my mouth (orimandible dystonia) and it is just SO frustrating!

So - any advice for healing pressure ulcers with RSD? or in fact for managing a non opening jaw as I do NOT want an NG placed.

Hope you are all ok and getting festive!

Rosie xxxxxxx