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Old 04-10-2009, 03:45 PM
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hollym hollym is offline
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Join Date: Jan 2008
Posts: 1,690
15 yr Member
hollym hollym is offline
Senior Member
hollym's Avatar
 
Join Date: Jan 2008
Posts: 1,690
15 yr Member
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Everything is really going OK. I am so pleasantly surprised. This hospice organization is really amazing. Anything we need / want to help her is delivered pronto. They really seem to be very adept at getting action, too. They were able to get her a pain med that actually works for her. They offer so many services for us that I can't believe it.

When Grandma had to get to the hospital by 9AM to get her feeding tube changed (the old one was leaking), they arranged to have an aide here by 6 AM to get her cleaned up and dressed and an ambulance here by 8AM to transport her to the hospital (because my house is really not wheelchair accessible, they have to take her out on a stretcher).

They are here to support us, too. They have respite care if we need it. They have bereavement counseling if we want it. They are also sending me out a book to help me talk to the boys about it.

Yesterday, the aide that comes out every day even gave Grandma a manicure. She also said that she will change Grandma's sheets once a week. Some of this stuff is so unexpected. The social worker said that when she passes, we don't even have to worry about calling 911 or the funeral home, just call them and they take care of all of that. She also said that they would call the Red Cross to get my brother back from Iraq. I was just blown away.

Now, if I could just find some energy to get stuff done around the house now that I'm home more....
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Dx: CNS Demyelinating Disease (2005)

Take me back to days full of monkeyshines
Bouncin' on a bubble full of trouble in the summer sun
Keep your raft from the riverboat
Fiction over fact always has my vote
And wrinkles only go where the smiles have been...

Jimmy Buffett from "Barefoot Children in the Rain"


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