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Old 04-10-2009, 06:09 PM
bluesky bluesky is offline
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Join Date: Mar 2009
Posts: 173
15 yr Member
bluesky bluesky is offline
Member
 
Join Date: Mar 2009
Posts: 173
15 yr Member
Default Thank you!

Thank you for replying!!!

Oh my gosh, you just exactly, completely described my life. Exactly.

And, yes, I get a lot of pain when I use my muscles. It can be absolutely agony.

How do we find each other on facebook? I have a page but it's just absolutely basic at this point.

Thanks again for helping me!

Ally




Quote:
Originally Posted by mm80 View Post
Hi Ally,

Well for me, I cant realy say I had muscle weakness for me it was more fatigue and sometimes it would be extreme, I think this was all on my real bad days, I would wake up and 3 hrs later I would be back in bed asleep for another 2 hours and then I seemed better in conjunction I noticed when im really fatigued thats when I have more breathing problems, I would wake up b fine then cpl hrs later get worse, I would have a nap, then I would be ok again till late afternoon. I am currently seen a private Neuro and she is fantastic I had a Repetitive nerve function and EMG done, and it wasnt until she tested my facial muscles that she agreed I have some deficit, hence why she has put me on the IVIg , previous neuro did the neuro exam, holding hands out and all but all my reslts came back fine, I have noticed latley though that I cannot hold my hands out for more the 30secs without getting pain as iff they are cramping up and weights have been put on them. if I were you I would def push for getting an emg test done, are you on any meds at the moment if so how are they to you? anyways im not sure if i answered all ur qns but feel free to message me anytime if I can be of more help, and if you like let me know if u want to chat on msn/facebook etc

take care have a great weekend and happy easter
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