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Junior Member
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Join Date: Apr 2009
Location: shiloh, tn
Posts: 91
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Junior Member
Join Date: Apr 2009
Location: shiloh, tn
Posts: 91
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some differences..
Ally, relax & take a deep breath...you will find your answer...I think my case may be somewhat different than most, the breathing on exertion (exertional dypsnea) has been the most debilitating for me...now, after the fact, I realize the extreme fatigue I was experiencing has been going on a long time & I blamed that on so many other things that it muddied the waters....when I moved to Tn, I made 5 (2x1000mile) trips with truck & trailer, & had been on Lipitor...so when the more extreme fatigue & dypsnea set in shortly after that, that's what I blamed it on....one Endo doc in Jackson, tn, told me I was in congestive heart failure so I should expect this, what a joke!!....after a cardiac cath in Nashville found me normal, the emphasis went to pulmonary...all those tests were normal, & after a bronchoscopy, minor changes were found & not explained...on & on goes the saga you all know well... .
I don't think my PE neuro tests were too helpful....seem to have enough strength in my hands & can hold my arms up ok 'til he pushes down on them, but I do have some resistance...now hip flexors & knee extension are a bust... I guess it was the repetitive EMG that settled the question cuz I didn't do well there...when I think 'bout it, standing for a length of time has always been too difficult for me, always looking for a place to sit...ask any questions, I'd answer if I can....keep your chin up & get a good neuro doc & those tests done....good luck
Dottie
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