I am new to the NTC site and scanning thru some of the letters saw yours. I understand what you've been through in status having been there more than once in the past 25 years since my problem started. The difference is that my visits to ER were during med changes-- not STOPPING because of insurance problems and financial difficulties! In my country these things don't exist as anyone with this problem is given an automatic exemption by the gov. ins program from having to pay for the meds, hence they are always available. This is one big reason I don't or won't return to the States. I could never afford the meds (they cost about 3 times as much there as the paying price here w/o gov. ins. exemption---why???) Medicareless.. at its best doesn't leave me any possibility. The SSdisability leaves one limited in finding a job--I left the country originally because ep. onset ended my career. but never mind, I find it scandalous you should have to go through what you did, risking your life for lack of adequate medical care (in this case medicines). good luck