You would be amazed at how many doctors are clueless about nutritionist and supplements. I do know I saw a holistic type doctor who was more intuned but many regular physcians are not. I am not saying it is a cure but a combo approach could benefit. I see you are not in the US and correct me wrong but don't many reumatolgist order the ivig or indicate if it could help? Hang in there and you are not alone though I know it can feel like it that is for sure.