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Originally Posted by stressedout
Thank you everybody, I am glad I can come here. This is a workers comp case and the nurse case mgr has already denied me the cream the dr wants me to try. It is specially mixed, i know it has keta/keto/lidacaine and some other things. He said it will help with the burning. Anybody have any experience with something like this?? Now I worry that they won't let me get the blocks. The Ultram/Tramadol helps a bit (pain is down to a 6 from 7) and it helps me get to sleep but not for the whole night. I am terrified of the blocks but know that i must try. Hope they will put me to sleep. I wish my husband understood more. He says he knowws I don't feel well but he isn't getting it. e turns it around to himself and says that his stomach is in knots etc. I just want to tell him to shut up and get over it. I need him to be there for me. How do you get through to family members???
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Hello,
I'm sorry you had a need for us, you'll be happy you found this site. You are living and emotional roller coaster so hold on tight :winky. We have all been there and after 8 years I still get on sometimes.
Keep in mind no two people have the same nervous system. That is why there is no cure and what works for one person may not work for another. It takes time but there are treatment options that really can help. Finding the medications that work for you may take time but it will be time well spent.
Talk to your doctor and do as much research as you can on your treatment options that are offered. Don't allow your life to be defined by your condition. Be an active participant in your care not a spectator.
It is hard on family memebers. They love you and see your hurting and don't know what to do to help. When my husband comments on how he feels I just respond with I understand pain completely. It's ok to get frustrated with people when they complain how they feel until they walk in the shoes of someone with RSD they have no idea how bad we feel. There is a website rsds.org and it is great source of information. Maybe your husband would take the time to read some of the information on this site.
Welcome to the site you'll be glad you checked us out.
Take care,
Sherrie:grouphug