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Originally Posted by lucinda 2009
Thanks for your all of your kind words and advice, its really comforting to know that I am not alone 
I looked at the blood results I have and there is nothing that says B12, the consultant's letter just said they were normal so I will ask for those, thank you. Its interesting darlindeb that you are looking at individual levels and not bound to what the gp says is the correct dose for you. The consultant offered pregabalin and amitriptyline and steroid injection in my wrist but I have steered away. I have an appointment with a new neurologist who specialises in PN at the end of the month so this is great I can ask about the B12 possibility and also why it fluctuates like some nights I keep waking with numbness in hands and fingers and others it doesn't so I want to work on my diet to see what difference, my consultant said there was nothing I could do diet wise but it seems that there is a lot that can be done. |
Things that come and go... one thing that you can do is keep a food journal and see what triggers bad days/nights. Sometimes you can find a clue there.
Also log your activity level in the journal and compare what happens later that day or the next. Food issues often have a delay..they may appear the next day.
When I was hypothyroid, I had terrible carpal tunnel AND foot pain. Because my tests looked fairly normal no doctor would address this. When I finally had one test a little off, I demanded a radio uptake scan, and that is where the partially dead thyroid was found. Females often have hypothyroid issues following pregnancies. Sometimes you have to be persistent with doctors. For example, the TSH scale has changed. It used to be 1-5 or 1-6, and now many doctors use 1-3 as the new range. If you are TSH 5, then you may indeed have low thyroid and could benefit from treatment. I only use 75 mcg daily, and that was enough for me to improve the carpal tunnel and feet. (not 100%, but enough so that I don't complain about it anymore).
MSG, or some other food intolerance may be a factor.
Fluid retention from too much salt will also cause some
compression numbness.
One has to really become a detective of sorts, to find answers. Everyone is different and people react to environmental things differently.
I found that the wrist braces made for carpal tunnel worked very well for me. You wear them at night, to protect the wrists from compressing nerves. I was told to wear them when I was pregnant, and had to have the EMGs etc for diagnosis. I keep them today even, if I overdo in the garden, I might have to wear them for a few days afterwards.
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All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei
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Weezie looking at petunias 8.25.2017
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