--are an interesting finding; that's rare enough (and you're right, they're usually associated with Miller-fisher syndrome and various brainstem/cranial/ocular symptoms) that they should be investigating deeper, possibly to see if they can reconfirm that finding or if there is cross-reactivity from other antibodies to gangliosides (especially the GT1a antibody, also associated with cranial/brainstem syndromes).

You do sound like a candidate for skin biopsy, to confirm that the small-fibers are damaged. My sense is that if you are having brainstem issues, that could show up on a thermal (quantitative sensory) test, but the skin biopsy would directly sample the small fibers.

Take a look at

http://neuromuscular.wustl.edu/over/labdis.html#gq1b

http://neuromuscular.wustl.edu/patho...ngliosides.htm