Ras, you sound a whole bunch like me, since 99, no dx though, and just in limbo. at this point I keep going, I have five kids an dwork full time..although having some rough times and out of work few days.

I am in PT for spasticity, terrible weakness they found on right side, and for balance issues worse on right side. They were surprised I have been like this so long. PT said boy Sarah you have learned to compensate over many years havnet you...well yeahhhh life goes on...falls, dizzy spells, numb/tingling pain, weakness, burns from lack of sensation, etc etc.... it is hard so RAS and all I send you great BIG hugssss,sarah