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Old 04-12-2009, 09:03 AM
ras1256 ras1256 is offline
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Join Date: Feb 2009
Location: outside Denver, Colorado
Posts: 366
15 yr Member
ras1256 ras1256 is offline
Member
 
Join Date: Feb 2009
Location: outside Denver, Colorado
Posts: 366
15 yr Member
Default It's worse on paper!

Thanks for reading my book!

I have actually been fortunate in a lot of ways - got married to a wonderful man when I was 19 - yep, still married after 33 years! - had my daughter when I was 20 and my son at almost 22. I had a whole space of time while they were growing up with very few, if any, symptoms that were severe enough to slow me down.

I have a beautiful almost 10 yr old granddaughter that I was healthy enough to really play with (like a kid, I did ) and we are very close.
I'm trying to convince her to want to be a GOOD neurologist, by the way - she is certainly smart enough - and maybe she'll revolutionize the way the docs deal with their patients.

I work with a fantastic set of people and have bosses that are the best - they have been so supportive!

My neighbors are so helpful to my husband and I; they bring us home baked GOODIES, call and check, volunteer whatever help we need (my husband suffered a severe TBI last year and is doing very well, but isn't his old self yet and get's tired much easier - this stress isn't helping him at all), and sometimes just sneak over and do things without asking!

I'm just surrounded by loving, caring people, and when I'm not in a bout I have a very fulfilling life.

Truely, my only complaint is life is that I keep with no answers and hearing the same condition names come up over and over, repeating the same ole tests over and over, and the bouts come closer and last longer so I dunno if it's time to go on disability, hold out for a dx this time so I can get treated - sell everything we own and go (umm-that sounds good!) or what. I'm just getting really tired of , you know?

But I am so much luckier than so many!

You take care!
Quote:
Originally Posted by dmplaura View Post
I'm in utter shock reading what you've been through. How scary those experiences must've been, and not having a definite answer for so long just adds to everything. You poor soul.
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"Thanks for this!" says:
dmplaura (04-13-2009)