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Old 04-12-2009, 09:00 PM
loretta loretta is offline
Senior Member
 
Join Date: Feb 2007
Posts: 1,090
15 yr Member
loretta loretta is offline
Senior Member
 
Join Date: Feb 2007
Posts: 1,090
15 yr Member
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Hi Ada, I'm so sorry about the itching. It is maddening for sure.My RSD Dr. said it's important to use sun screen when in the sun. I get rash break out from the sun and it itches. There is someone on here that has a cream made by a compounding pharmacist for the itchiness. If I can find it I'll PM you. I just had my first skin lesions and it took3-4 months to get rid of. They got infected. They are gone now. It's imortant not to keep them greased up, it keeps them from healing. I put some acne cream on some red dots and they got bright red and started itching bad. The Dr. said stop using anything but water and keep them uncovered. They eventually stopped itching and went back white. Still have the bumps but not itching. Skin problems go with RSD Iknow. I wear cotton and try to not sweat. I can use afan in the room to keep the air moving and cool. Dreading this summer in the arizona heat. As for soap, I use tide with no perumes etc. don't usedryer sheets either. Use Dove soap with no perume.and amild soap for face.
I also gained weight on Neurotin and then Lyrica. Went off about6 months ago and have lost 30 lbs. Feel better off. I did have one seizure the day I found out about one of my best friends daughter losing her first baby a few days before birth date. They think it was the cord. I kept her the first several hours to save on nursery bill. I was terribly upset for both of them. I'm working on cutting back on meds. Went off of two antii-depressants and went on just one newer one, cymbalta. I'm working on my 2nd set of 30 lbs and hope to go off or down on blood pressure meds. I was on 3200 mg of neurotin. Was alway so tired, but it did stop my jolts, spasms, shocks etc. Have had RSD 13 years now full body and feel my sympathetic system as calmed down alotl The anti-anxiety med Lorazepam has helped a lot. And I'm slowed my life down, and use exercise, meditation, music etc especially my furry kitty kat Sabrina. I'm learning to by optomistic and grateful and mostly have accepted my condition and want to help others that have this and other tragic circumsances in their life. It's tough. Take care of yourself, and I'll try to find that cream somewhere. I know Iwrote it down within the last couple weeks or so. Your friend, loretta jewell
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