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Old 04-13-2009, 06:36 AM
stayathomemom stayathomemom is offline
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Join Date: Apr 2009
Location: United States
Posts: 40
15 yr Member
stayathomemom stayathomemom is offline
Junior Member
 
Join Date: Apr 2009
Location: United States
Posts: 40
15 yr Member
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I had to go without my Mestinon for 24 hours first. I was told going without was the best way to achieve an accurate test.










Quote:
Originally Posted by Scots Kat View Post
Hi everyone,
My RNS was done by a youngish neurologist - not my neuro. My neuro said the other guy had more experience with the test. However, I'm from a very small area and there were only a few cases of MG. They tested my facial muscles, neck and fingers. He found (like you said) only borderline results - espeically from my fingers. BUT the tests were done early in the morning (so no fatigue built up) and I had taken Mestinon beforehand. This resulted in my neuro saying yes I had MG but it was a very mild case and I would likely be okay with just the occasional Mestinon. SOOOOO NOT TRUE! I let myself deteriorate until I could not walk or wash my hair before I went back to say something wasn't right. Now I have a new neurologist and am getting all the support I need.

Hope everyone has a happy easter!
~Kathy
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