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Originally Posted by ali12
An interesting question - thank you for sharing all of your input!
I have a double bed. I haven't had a single bed since I was about 8 years old (now 14) as I just didn't find them comfortable and didn't think that there was enough room in them.
Since I developed RSD, my mum has always slept in my bed with me. I fall quite a lot sometimes so my mum prefers to be with me to watch me if I go to the toilet in the middle of the night etc. Also, when I was first diagnosed with RSD, I couldn't walk at all so had to rely on my mum to take me everywhere. Some people think I'm strange because my mum sleeps in the same room as me even though I'm 14 but I tend to rely on her a lot when I'm not feeling well.
My mattress is super soft. It is a memory foam mattress. My mum can get to sleep straight away in it nearly but it takes hours for me to fall asleep! I don't sleep that much either and always fidget as I cant get comfortable. I have to sleep with my leg out of the side of the bed and now that I have RSD in both arms, it is even harder as I can't lay on my sides really now for pain.
If your boyfriend has RSD in his leg, it might be worth getting one of those 'cages' for your leg - especially if his leg is hypersensitive. They fit under the duvet cover and you put your leg under it and it stops the blankets from touching you. I had one and it was useful but the hypersensitivity started spreading so after so long, it didn't help really. You can get them off the INTERNET and they are pretty cheap.
Some people I have spoken to have said that Orthopedic beds are good so that might be something to look into also.
Take care.
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Dear Ali, I don't think its weird your Mom sleeps with you, God Bless you. What ever can bring the two of you some peace. I know what you mean about getting up to go to the bathroom in the middle of the night and falling. I have fallen three times and split my head on the marble floor. So your caution is for real. Especially since you have such terrible tremors and spams in your leg as I recall your video. Its so wonderful your Mum is so caring.
Take care Ali and thanks for sharing. Sincerely, CZ