Quote:
Originally Posted by lindkaye
Hi there;
Need your expert opinions! I can't go on with this severe muscle ache and pain everywhere! In the am I can't bend my hands for a cup, can't lift my arms up because of pain in the shoulders, etc - all over. I am now thinking it might be one of the meds. When I was diagnosed - this aching pain was not part of the problem - have the RSD in my right knee/foot. Only after starting the meds it came on. When I questioned my PM dr - he stated it just might be a referred pain from the RSD.??? If it was in a couple places maybe - but my whole body? In reading up on Lyrica - I have a feeling it might be the problem. I take Lyrica, Oxycode, Methadone, Cymbalta, and Levothyroxine (for thryoid). Has anyone had this problem and it turned out to be Lyrica? I have not had the weight gain with the Lyrica as others have. How has other's weaned off of Lyrica? Right now I have been taking it 3 times a day - 50 mg ea. Do you think a couple of days lowering it by each pill - or should I make it longer? I just cannot go on with this ache any longer. My RSD pain has been better - and I am hoping it wont get worse coming off. Other delimma I have is I was diagnosed with MS and now have to start shots for that. Get this - side effects are up to 6 months flu like symptoms. Oh joy! I have to get my aching under some type of control before I start that treatment or I will be jumping off a cliff! Sorry to complain - its just I had planned on taking the whole family to church for Easter - and I couldn't even get out of bed. I'm tired of everything revolving around me not feeling well -its not fair to everyone else. I apologize for the complaints - thank you for listening and if you have any ideas or suggestions - please let me know. Happy Easter.
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Lindkaye;
I cannot answer your questions, as you ask for an "expert", and I am only a fellow sufferer.
I've had RSD/TOS for 26 years, (Half my life), then a TBI and crushed discs for the past decade.
I can only advise you from my experience.
First, with your level of frustration, it doesn't seem that you have, or have communicated with your neuro. Your doctor.
I'll repeat the triangle of treatment for RSD.
Your Meds. / You and your doctor.
Your Attitude. / Your and your pain management psychiatrist. (who may only be needed for a year or two, then, to check in with occasionally).
Your Body / Your excercise routine. Walk. Get in a warm pool, and simply walk through the water. The resistance the water gives, will reward you! It will take time, and it will hurt at first, depending on how far you've let yourself fall.
But, back to #1.
Your doctor Your Neurologist.
Do you have a GREAT relationship with /him/her?
If not, make it so.
If you can't, find another, who REALLY KNOWS RSD!
(I"m repeating myself, but, lots of neuro's are docs who became docs, so as not to get "dirty".)
They can, be lazy.
So, be sure yours, is on YOUR side!! Test him/her if you must!
Do It!
Then, have your most intimate pain conversation with that doctor!
You'll know, when s/he gives you the time!
Stop, at NOTHING LESS!
I hope this helps.
I know it's not what you asked, but, it seems to me, that you have "jumped over" these steps.
Prayers for you,
Pete
ASB