Why do these docs continue to believe pain meds don't help?? Grrrrrr If they didn't work then why the heck do so many of us get some relief from them????? Funny how they don't work. HA!! Flares are different for everyone and having a breakthrough meds helps a lot of people. When a flare happens it's like you need a little extra kick so to speak to keep up with the pain. I think it's just an excuse they have handy for whatever reason. It's pure bs in my opinion.

I know that bio-feedback, meditation and things like that can help some but it's not going to keep your pain under control and it won't help much when you're in a flare and can't think straight! Sympathectomies and SCS are the things you should never, ever do with rsd. Both cause spread and more pain. I'm glad they were denied cause I'd hate to see you end up "worse off" because of the misguided notions of docs who still don't know a dang thing about rsd. *sigh*

Those are my 2 cents for what it's worth. LOL

Hugs,

Karen