Hi everyone. Thanks for your responses - its nice to know that people understand what I'm going thru. Well, I called my pain managment doc and explained what was going on and that I wanted to try going off the Lyrica to see if that was what is causing my extreme joint/muscle pain. He more or less said I could if I wanted to - just go off a little at a time - not all at once (which I already knew). I don't get a lot of response back from him which worries me. I don't have a neurologist for the RSD. Just my Pain Management dr, my Primary dr and my Neuorologist for MS. - she is excellent and I have had her as my dr for only 3 months. But - she does not know that much of RSD - her expertise is MS. She does not feel that the severe aching is the MS - although MS can give you some pain. My primary dr did find out that my thyroid was not working and that is the resulting of my sweating to no end - so new meds for that. But my pain management dr did not even try to figure that out - just said RSD could cause the sweating. I realize it could but wish he would of offered to run tests - if he did he would of found out about my thyroid instead of me having to go to my Primary.

So - what do I do?? I have liked my PM dr but he is so laid back - and not real informative back. I do have a chance for 2nd opionion over at the U of W - my primary dr stated she would give me a referral. They also have a pain management team that deals with MS as well as RSD. So - I hate thinking about trying another dr but think this might be my only route. My primary dr is a little confused as to the pain also. I am supposed to start my MS shots in about 3 months ( I was given a repreive - was supposed to start this month) - but they can give you flu like symptoms (aching, fever, etc) for up to 6 months! I cant imagine that on top of how I feel now - there is no way I could cope. Sorry to ramble - but I feel like you guys do understand the pain and frustration with this disease. Thanks again for your advice -