I didn't have any real pain in my back until I got the scs implanted. Now that I have it out, it hurts (rsd type) where they implanted the battery, (2 places), and where the leads were. They had opened my back due to the infection of the 2nd one. I have scars from where the bra goes across the back, down to the tip of my toes. It has also now spread to my should blade area. It really burns a lot. My dr was the same as yours. This is a pain spec. How they don't know it spreads is beyond me. He said it does spread, and checked both of my feet, where it started. They were both cold as anything, and I had heavy socks and athletic shoes on. once he saw the mri was clear, he had no other option then saying that it was indeed the rsd. I felt so happy to hear that. Not that it spread, but that I was right. Now I'm looking to get the pain pump. It is supose to be really good, and it works wonders for the back pain.

Hugs
Mary