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Old 04-15-2009, 11:40 AM
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CRPSbe CRPSbe is offline
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Join Date: Mar 2009
Location: Belgium, Europe
Posts: 832
15 yr Member
CRPSbe CRPSbe is offline
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Join Date: Mar 2009
Location: Belgium, Europe
Posts: 832
15 yr Member
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Pete,

First of all, OMG what a story. 26 years with RSD! I can't imagine... My hat's off to you!

You are right, once you have RSD... better watch out. Into remission? Best be careful. It might still get worse.

I have RSD in my legs for almost 14 years (diagnosed almost 3 years into it), and thought that it would stay there... until January 2008. I started feeling the same symptoms in my arms and hands. It spread! I still have no idea why that happened. It just did. I didn't injure my arms or hands, it just spread. Just like that.

It's a horrible condition to have, and I think that once it's in your system, it's in your system.

You are right, you manage RSD and you can only hope you get into remission (in a lot of cases with lasting problems), but there is no cure.
__________________
All the best, Marleen
=====================
Work related (car) accident September 21, 1995, consequences:
- chondromalacia patellae both knees
- RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008
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AintSoBad (09-25-2009), loretta (09-27-2009)