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Originally Posted by DONTTOUCHIT
Does anyone have a clue to what may be in store for me next , Meaning when or will it get worse ?? I know itd be a guesstimate but is there kind of a time frame certain thing may appear?
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This is one thing no one can even guess at. We all have rsd but every one of us reacts differently to treatments and meds. Our bodies function differently so no way to guess when or if it will get worse, if you'll be lucky and get remission, when it'll spread or how. Some spread fast, like me...I was full body in 11 months and I know others who had it happen in 5 months or less. Some spread slow, some have no spread at all. Some get osteoporosis quickly, others slow, others not at all or it takes a long time. With rsd there is no such thing as a time frame. LOL It does what it wants, when it wants depending on how our bodies work.
The first thing usually done is blocks. They don't always work or they might work for a little bit and then stop working. I know you're still trying to digest so much info and all. Blocks work and give pain relief if the pain is still sympathetically maintained and if the pain has gone sympathetically independent, then there will be no relief. The "optimum" time is in the first 3 months after rsd symptoms appear, BUT some people have the pain stay maintained for years and get relief from blocks longer than others. Here's something for you to read when you feel like you can digest it on maintained and independent pain.
http://www.theanswerpage.com/Pain/an...o?rec=13014641
http://www.ppmjournal.com/abstract.a...cleid=P0407F03
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I can kinda touch it but when the PT touches it I squirm wiggle and almost vomit
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We can often touch ourselves in the rsd affected area but not be able to stand someone else to touch it. The reason is due to the way our brain perceives sensation. We can touch ourselves because we know how hard or soft and when the touch is coming. With others we don't know any of that. Does that make sense? I find it hard to explain it though in my mind it makes sense. lolol
RSD affects all the systems in our body. It's the reason for the abnormal hair growth, nail growth, skin changes, running a fever(low grade,sometimes high), blood pressure changes, feeling hot or cold because we can't regulate our body temp. These are just a few things but all of it is caused by rsd messing with the sympathetic, parasympathetic, autonomic and somatic nervous systems. Not one thing is left untouched. Darn crud! LOL
I hope I haven't overwhelmed you. Welcome to the boards, sorry it's because of this. Keep asking questions as well as just venting if you need to. We were all "newbies" at one time. :-)
Big
,
Karen