Hi. Have you spoken to your neurologist about the eyelid drooping again? What if it means you are better and need to back off of meds? And if you are worse, he needs to know that too!

What sucks about MG is that it is considered to be a progressive disease. It can "level off" at some point and go through phases of being worse or better. But those little antibodies do create destruction at the neuromuscular junction and you end up with less receptors. Don't let that upset you because people do level off or get better.

The most important thing to realize is that drugs help but management of your activities (getting enough sleep, staying out of the heat, not doing too much, etc.) will help a lot too.

I think having a conversation with your neuro, especially since the warmer months are here now, is a good idea. Don't get discouraged!!!

Annie