I have been on Mestinon for about 4 years but recently began having breathing issues so that was why the move to try IVIG.
I am hoping that by going on these boards I will also get the more practical side to dealing with MG.
It took forever to get a diagnosis and while I think I have had some good Dr's the language they speak is just frustrating and always clinical.
So thanks and hello and looking forward to good advice!
Quote:
Originally Posted by AnnieB3
Hi. I'm sorry you had a reaction to IVIG. I'm glad they were able to figure that out right away.
Do you have a good internist? You might need a chest x-ray and an ECG just to make sure either the reaction or the pred didn't do something to cause yet another reaction! Some people can get fluid or inflammation in the lungs or get arrhythmias of the heart from drugs. I think a call to your internist/primary doctor is warranted. If things get worse, go to urgent care or the ER.
Sometimes it's the batch or brand of IVIG that can cause anaphylaxis. Since they can't know for sure, it would be a huge risk to try it again. Do they have other options for you? I've never had IVIG but others have and I'm sure they'll have suggestions for you.
I hope you feel better.
Annie
|