Quote:
Originally Posted by kidaho
I had a Medtronics spinal cord stimulator implant put in over 3 years ago now because of RSD in both my arms. The surgery was a success with regards to the RSD, I had great luck with the Medtronics people, but the wires themselves caused me great pain in my back (it felt like a stake had been put in my back) and caused me horrible nausea and vomitting. After about 9 months and twice going in and attempting to reposition the wires (the idea was that perhaps it was sitting on a nerve root that was causing this nausea/pain), we finally had to take it out for my safety. Upon removing the wires, the pain eventually went away in my back, but the nausea has remained ever since 24 hours/7 days. They have tried every family of nausea medicine. I have been checked out by GI specialists as well because there are also some gastrointestinal symptoms that have started at the same time and have never left. The type of nausea it is is motion sickness type of nausea. And the best they can figure my spinal cord has just been "irritated" for some reason... and they don't see it ever going away. They just keep trying new medicines. But I would be anxious to hear from anyone who had or has this problem as a result of a spinal stimulator implant. I have found one study describing my results exactly, but it does not have any good information on what to do about it at this point for my case... it just advises to take it out in these cases... which we have done.
Currently my RSD has come back as well. Luckily, the time I did have the stimulator turned on did help seem to "reset" it, and when it came back it so far has not come back with the fierceness it had the first time so I have been maintainable on medicine.
So I would love to hear from anyone with any similar post-surgical symptoms.
Thanks so much. And I am amazed to see so many RSD people posting online. I think that is the problem with this illness. It is so easy to just go into yourself and let time pass without any socializing at all.  |
since you have seen gi docs, i dont know if this will help but here is what happened to me when the stomach pain and nausea got out of hand for me.
when the stomach pain became unbareable, i finally goto emergency room. they find nothing of course. so i see a gastro dr. and they find out i have 2 dozen ulcers(6 are bleeding), hiata hernia, gurd, and ulcertive colitis or crohns. later they said it was crohns. a week passes and im still in pain so i go back for more tests and they find gallstones so they take out the gallbladder. a couple weeks later the doc says i have gout and a staph infection. all this happened in a 2 month period and it took place 4 months after the scs was put in. i dont know if it is coincidence or not. with the gallbladder gone, i havehalf the nasua and stomach pain now.. i was told to watch the greasy food and spicy food for the gallbladder and chrones. i was told to watch how much protein i eat for the gout. i have basically eliminated meat and the stomach pain and naseau have been controlled for the most part.
sometimes i use phenergan 25mg at home or when i have to get into the car(passenger)(never had car sickness before). phenergan makes me drowsy though, so sometimes i use belladonna or pepto.
good luck
mike