Quote:
Originally Posted by Jennelle
I never knew that nerve blocks could make rsd spread. I have had 6 and my rsd has spread to my right arm (now it is left and right). I need to know if anyone has studies or concrete info on this because one dr believes that the rsd has spread and another doesn't and is making me go through the whole process of bone scan and emg again. He said for rsd to spread it is really rare and that without another injury to that arm he doesn't know why it would. Now I am wondering if it was the injections that were responsible. If anyone could email me or pm me some info to give to the doctors (and maybe save me from some very painful procedures) it would help A LOT! Thank you all again for being patient with my question-a-day. I really think you are all wonderful and am grateful everyday to be able to log on and find friends who understand.
lots of love,
Jennelle
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Jennelle,
You've gotten some wonderful advice here.
What I'm not happy with is your doctor. He's just not knowledgeable with rsd, if he doesn't know how it spreads. Of course blocks can make it spread.
I reckon it to a short circuit in wiring. (really, undersized wire that's overloaded with pain signals). If the wiring keeps being overloaded, the short circuit is GOING TO SPREAD! (The reason I believe blocks can help the spread is, you get relief at first, sometimes, then, the pain returns. That's another overload on the wiring.) Soon, blocks are useless, and often the rsd has exploded. It's my belief, that if the blocks do you no more good, why get them? Why take the chance?
My doctor is VERY knowledgeable, and, knows that he won't make the pain zero.
That's not his goal. He works to make it tolerable. And, not let it get WORSE!
I've had tests and blocks that have sent my rsd from left arm/shoulder, to full body.
Although, it has been a long time, @26 years.
But, life goes on! For everyone!
You're asking all the right questions, if you're stuck with this doctor, keep bringing him information. I hate to recommend doctor shopping, because I know what a pain it is.
Often, the insurance company will help you, if you call the "whoever" and say you're not getting good relief, you've studied this disease, and you know you need someone who specializes more.
Just some thoughts.
I hope you find some good relief!
Pete
ASB