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Old 04-18-2009, 07:03 AM
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Riverwild Riverwild is offline
Magnate
 
Join Date: May 2007
Location: Heah!
Posts: 2,921
15 yr Member
Riverwild Riverwild is offline
Magnate
Riverwild's Avatar
 
Join Date: May 2007
Location: Heah!
Posts: 2,921
15 yr Member
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I agree!

One good thing that has come from this economy is that a lot of others are drawing inwards to home and family too. I made that move a long time ago and have lived it since then.

When I was relapsing every three months it was all I could do to get out of bed and make it to work. I didn't go out and socialize, I didn't visit anyone, I didn't call anyone. Friends dropped away like shedding wool clothes on a hot day.

I got tired of trying to explain. I got tired of making excuses and I just stopped. If they didn't understand or accept what was happening with me, I didn't waste my energy trying.

I have family here now from out of state that we haven't seen in a few years (pre-diagnosis) They are getting a first hand look at what has changed. I think maybe they are closer to understanding. There's still been some insensitive comments. I don't care. I'm too tired to explain again. I think maybe the man gave them an earful after I went to bed last night at 9:00 p.m.

This morning one of them came out and apologized. I told him that even though I may not be the same in energy level, I am still the same person, just more tired!

It DOES vacuum big time. I just wish it worked on cleaning my floors!
__________________
I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away?


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I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends!

diagnosed 09/03/2004
scheduled to start Tysabri 03/05
Tysabri withdrawn from market 02/28/05
Copaxone 05/05-12/06
Tysabri returned to market 06/05/06
Found a new neuro 04/07
Tysabri 05/25/07-present
Medical Marijuana legally 12/03/09
.

Negative for JC virus antibodies!
.

I'm doing alright and making good grades,
The future's so bright, I gotta wear shades!
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